WOW!
The blog has received 10,000 views.
Reached 30+ countries. (Estonia being second after the US for views)
Made it to a few Latvian websites.
and more!
I'm currently sitting getting my last RED DEVIL chemo treatment.
I think I have drank the last slurpee of my life too.
I don't think I can ever even look at one the same again.
Never before did I believe it was possible to get nauseated just from the thought of something.
Guess I've learned, anything is possible!
(In case I didn't cover it before, during 15 minutes of the treatment you have to keep your mouth as cold as possible to avoid mouth sores. During the first treatment they suggested chewing on ice. I didn't want to do this because it hurts my teeth. Not thinking, I got a slurpee instead.)
Not much else to update.
I'm still bald.
Haven't lost anymore weight, haven't gained any back either.
Still miss being able to have coffee every morning. :)
My sister, Kelsey, is putting together a fundraising event for September 13th.
Details will come sometime in the next 2 weeks but please save the date!
Round B of chemo is 12 weeks long.
This starts in 2 weeks, July 28th.
It is going to take 6-8 hours, going to be a long day!
Hope everyone had a nice weekend and happy Monday.
Monday, July 14, 2014
Tuesday, June 17, 2014
Chemo process
Ok, in my last post I promised I would let you know how a chemo treatment goes so here it is:
Monday
11:45 visit with doctor about how things are going and address any questions.
12:00 sit down in the chemo area (this time I opted for a private room)
12:15 nurse comes in and introduces herself and taps the port
12:30 port flush just to realize it's 'clogged'
12:45 put in meds to flush port, wait 30 min
13:15 still clogged, wait 30 min
13:50 ok, it's good to go, draw blood to be tested (if the counts aren't high enough there is no chemo)
14:15 everything is ok start steroid drip
14:45 start anti nausea drip
15:15 flush
15:30 start chemo 1 (red nasty stuff)
15:45 start second chemo
16:45 flush
17:00 DONE - what a day.
17:15 Get hair chopped off since clumps are coming out.
Tuesday
15:00 Sit down in chemo area
15:05-15:15 everyone comes looks at my hair :)
15:15 Start IV hydration drip
4:30 get immune system shot (this is what messes up everything for the next 2 days!)
What a time consuming process!
I have a faux hawk now. When the rest falls out I'll post all the pictures, sometime later this week I'm sure it'll happen!
Thanx for stopping by.
Monday
11:45 visit with doctor about how things are going and address any questions.
12:00 sit down in the chemo area (this time I opted for a private room)
12:15 nurse comes in and introduces herself and taps the port
12:30 port flush just to realize it's 'clogged'
12:45 put in meds to flush port, wait 30 min
13:15 still clogged, wait 30 min
13:50 ok, it's good to go, draw blood to be tested (if the counts aren't high enough there is no chemo)
14:15 everything is ok start steroid drip
14:45 start anti nausea drip
15:15 flush
15:30 start chemo 1 (red nasty stuff)
15:45 start second chemo
16:45 flush
17:00 DONE - what a day.
17:15 Get hair chopped off since clumps are coming out.
Tuesday
15:00 Sit down in chemo area
15:05-15:15 everyone comes looks at my hair :)
15:15 Start IV hydration drip
4:30 get immune system shot (this is what messes up everything for the next 2 days!)
What a time consuming process!
I have a faux hawk now. When the rest falls out I'll post all the pictures, sometime later this week I'm sure it'll happen!
Thanx for stopping by.
Monday, June 9, 2014
Scolded by the oncologist
Whoops!! Somehow I lost 13lbs in a week so.... who wants to go out to eat this week? :)
Other than that no bad news at the docs today.
I seem to be almost back to normal feeling today, bit tired this morning.
Hair is supposed to fall out by Sunday, 4 days sooner than I was ready for, but guess it's time to brush those wigs!
I did get a FaceBook message today telling me it wasn't appropriate for me to post cancer stuff there.
Any guesses what happened after that?
Oh, I have one less FB friend.
That's all the updates I have until chemo on the 16th, hope everyone has a great week!
Other than that no bad news at the docs today.
I seem to be almost back to normal feeling today, bit tired this morning.
Hair is supposed to fall out by Sunday, 4 days sooner than I was ready for, but guess it's time to brush those wigs!
I did get a FaceBook message today telling me it wasn't appropriate for me to post cancer stuff there.
Any guesses what happened after that?
Oh, I have one less FB friend.
That's all the updates I have until chemo on the 16th, hope everyone has a great week!
Thursday, June 5, 2014
Chemo is kicking my ass
Hi everyone.
I know I said I'd post more often but I gotta be honest it's taking everything I have to post this right now.
The very short of it;
Chemo started Monday, IV drip and immune shot Tuesday.
It's kicking my ass, I'm tired but can't sleep.
Yesterday my bones hurt from the inside, mostly from the waist up, strange and painful feeling.
Today I'm not sure how I got the energy to shower, but thankfully I did and Dayna braided my hair again.
Mom brought dinner 3 hours ago and is on her way back to clean up after me right now, just to give you an idea of how little energy I have. Yes, I called my mom to help me clean up my plates after the dinner she bought and brought me.
When I have more energy I'll post more about what's been happening.
Next chemo treatment is June 16th, likely that is when I'll post exact details of what it consists of.
(Red devil chemo, google it if you're bored)
Good night everyone.
I know I said I'd post more often but I gotta be honest it's taking everything I have to post this right now.
The very short of it;
Chemo started Monday, IV drip and immune shot Tuesday.
It's kicking my ass, I'm tired but can't sleep.
Yesterday my bones hurt from the inside, mostly from the waist up, strange and painful feeling.
Today I'm not sure how I got the energy to shower, but thankfully I did and Dayna braided my hair again.
Mom brought dinner 3 hours ago and is on her way back to clean up after me right now, just to give you an idea of how little energy I have. Yes, I called my mom to help me clean up my plates after the dinner she bought and brought me.
When I have more energy I'll post more about what's been happening.
Next chemo treatment is June 16th, likely that is when I'll post exact details of what it consists of.
(Red devil chemo, google it if you're bored)
Good night everyone.
Saturday, May 31, 2014
CT Scan results
I swear, PVH doesn't have anything together!
I had my CT scan on Friday...
Because of the type of surgery and risks with getting IVs in my arm it was a mess to get the right team of nurses to 'tap' my port. Then to get it all of the crap out after the scan.
This was an interesting experience, they sterilize the area just as much as if I was getting surgery. I can't even watch them put the needle in because I might breathe on it and it won't be sterile anymore. So they make me look away and put a paper on my face.
CT Scan came back great, no cancer! No pneumonia! No blood clots!
Chemo starts Monday... dun dun dun.
Got another wig today.
I had my CT scan on Friday...
Because of the type of surgery and risks with getting IVs in my arm it was a mess to get the right team of nurses to 'tap' my port. Then to get it all of the crap out after the scan.
This was an interesting experience, they sterilize the area just as much as if I was getting surgery. I can't even watch them put the needle in because I might breathe on it and it won't be sterile anymore. So they make me look away and put a paper on my face.
CT Scan came back great, no cancer! No pneumonia! No blood clots!
Chemo starts Monday... dun dun dun.
Got another wig today.
Wednesday, May 28, 2014
Fills, chemo training and CT Scan
Whew! This Linda lady is going to drive me crazy!
Now backing up, I see Linda tomorrow to do 'chemo training'.
I'm thrilled if you can't tell :)
I have yet to know if she will be part of my whole chemo routine or not.
Friday I have a CT scan on my lungs. This is mostly precautionary, I pushed for it, they weren't sure it was necessary. However they did say, if it's in your lungs we'll find out eventually. I haven't been sleeping and I've been Google-ing WAY too much so I pushed to have peace of mind now instead of just waiting. I should have just done this sooner, like when I had the brain MRI done. I don't know why I put myself through the waiting. Stupid idea!
Yesterday I had my first "fill". 50cc on each side.
This is an instant gratification moment, hahaha!!
One of the strangest feelings in the world at the moment is watching a needle stick in my skin and not feel it. As far as I'm told I won't have feeling ever again. I think I'm young enough that eventually maybe nerves will repair over time. Only time will tell. The body does amazing things.
Speaking of which it's currently pissed off again though. More stretching muscle, feels almost the same as the days right after surgery.
My first chemo session is from 10-1 on Monday, June 2nd.
Thank you to those that have offered to take me. I need to make a decision soon.
Please don't take offense if you've offered and I haven't said anything...
This is going to be one of the hardest sessions I think. It's going to be new, scary and I don't know what to expect. Everyone feels different so they can't tell me what to expect really either. I may have side-effects right away or not until Thursday, another time will tell moment.
Tomorrow I will have the full chemo schedule and will post details this weekend.
See the "Universal Fill Kit" below.
I felt like it was a car part :)
Now backing up, I see Linda tomorrow to do 'chemo training'.
I'm thrilled if you can't tell :)
I have yet to know if she will be part of my whole chemo routine or not.
Friday I have a CT scan on my lungs. This is mostly precautionary, I pushed for it, they weren't sure it was necessary. However they did say, if it's in your lungs we'll find out eventually. I haven't been sleeping and I've been Google-ing WAY too much so I pushed to have peace of mind now instead of just waiting. I should have just done this sooner, like when I had the brain MRI done. I don't know why I put myself through the waiting. Stupid idea!
Yesterday I had my first "fill". 50cc on each side.
This is an instant gratification moment, hahaha!!
One of the strangest feelings in the world at the moment is watching a needle stick in my skin and not feel it. As far as I'm told I won't have feeling ever again. I think I'm young enough that eventually maybe nerves will repair over time. Only time will tell. The body does amazing things.
Speaking of which it's currently pissed off again though. More stretching muscle, feels almost the same as the days right after surgery.
My first chemo session is from 10-1 on Monday, June 2nd.
Thank you to those that have offered to take me. I need to make a decision soon.
Please don't take offense if you've offered and I haven't said anything...
This is going to be one of the hardest sessions I think. It's going to be new, scary and I don't know what to expect. Everyone feels different so they can't tell me what to expect really either. I may have side-effects right away or not until Thursday, another time will tell moment.
Tomorrow I will have the full chemo schedule and will post details this weekend.
See the "Universal Fill Kit" below.
I felt like it was a car part :)
Sunday, May 25, 2014
Subscribe to:
Posts (Atom)